Transplant Games

Salford Royal and the Transplant Games 2017

Hi All, It’s with great pleasure I am writing to remind everyone the UK Transplant Games 2017 are open for business with a deadline of Friday 12th May 2017 to apply. Here at Salford Royal we first started having a push on with the games a couple of years ago when they came to Bolton.[…]

‘Imagine what I could have done healthy’

In an interview with The Daily Telegraph just before the recent Rugby World Cup Jonah Lomu, who sadly died at the age of 40 last night, said “Imagine what I could have done healthy”.  That’s a scary thought given what he did achieve in the game but we should read more than that into those[…]

Team Manchester at the Transplant Games, 2015

Zoe Dixon, manager of Team Manchester has kindly written a report of the team’s experience and performance at the recent Westfield Health British Transplant Games in Newcastle & Gateshead.  With many thanks to Zoe and Arthur Taylor for sharing the report. BRITISH TRANSPLANT GAMES NEWCASTLE & GATESHEAD 30 July – 2 August 2015 The Manchester[…]

Half full or half empty?

  My daughter asked me an interesting question the other day. “Is your glass half full or half empty mum?”. I thought about this and started reflecting on my life. Do I think that I’ve been dealt some unlucky cards? Well yes if I consider that not long after I separated from my daughter’s father[…]

12 Months

12 Months… Today sees the 12 month anniversary of my dates with Dai #dialysis shocking where the times goes but also the longest 12 months ever! If I’m really honest..the hardest 12 months that only 2 people really understand..Lee and myself. Putting a few things down in print..maybe to share my experiences/thoughts with others going[…]

Shared Decision Making for kidney patients

With many thanks to Kate McNulty for allowing us to share this video.  Shared Decision Making (SDM) is a useful resource to identify your options when you’re approaching the point where you need to decide which type of dialysis is most suitable for you.  It will also help you talk in greater detail to your[…]

Be a part of it!

The British Transplant Games are taking place in Newcastle/Gateshead this year between July 30th and August 2nd.  If you come from Lancashire, South Cumbria, Manchester or North Cheshire and would like to take part please check out the details in the document below and contact Zoe Dixon who is the Manchester Adults Transplant Games Team[…]

What’s happening?

Hello hello, haven’t been here for a while.. Whats happening?..well dialysis is still a struggle (nothing new there!) no two days are ever the same. If an ‘ok day’ could be had two days on the trot, I’d be laughing! Plummeting Bp and flaking out..yay go me! 🙁 Anyone else encounter that!? Wobbly legs after[…]

Atypical HUS – a story of tragedy and triumph

“To watch people you love die is very hard to take”.  These are the simple yet poignant words of a man who has battled with the ultra-rare illness atypical haemolytic uraemic syndrome (aHUS) for around 30 years.  It causes sudden kidney failure and is rapidly fatal in at least a third of cases.  Those who[…]

Arthur Taylor’s Blog on the Westfield Health British Transplant Games, 2014

This is our first feature as we start to build up to the 2015 British Transplant Games in Newcastle.  Arthur Taylor’s blog on taking part in the very successful 2014 games held in Bolton. “We went on Thursday 7th August to Bolton for flat green bowling and it was a brilliant experience, unfortunately there were[…]

Pause For Thought

I’ve always been one for reflecting on events in my life, thankfully these days I manage to avoid the negative, confidence sapping reflection that fuelled my period of deep depression. Nowadays I look for the postive things in my life and celebrate even the minor achievements no matter how insignificant. Until last week I counted[…]

My 5 day countdown to my #Kidney #Transplant

Hi Everyone, My name is Joseph, and I am a CKD patient who is having a kidney Transplant on Friday 01st August 2014. I am very fortunate that my older Brother is giving me the gift of life. In 2010 I became ill and quickly the doctors diagnosed CKD. For the next 4 years I[…]

Newbie to gmkin..Hello :-)

Hello all, complete newbie to gmkin and this blogging malarkey, be kind… Not really sure how to start this, so here goes… When you’re asked ‘how are you?’ or ‘all ok with you?’.. It’s easier to answer ‘alls ok’ or ‘not too bad’ Not say how rubbish you feel things really are. Why would anyone[…]

Changes to Immunosuppression Medication Prescription

Some of you may have read a recent warning from the National Kidney Federation regarding changes to the method of prescribing immunosuppression drugs for transplant patients. Immunosuppression drugs will now be prescribed and dispensed from the patient’s renal centre. I had expected to hear more about this significant change but have heard nothing. Then again,[…]

My name is Luke Hooper and I’m 21 years young..

Afternoon people! I’ve only recently joined this website so here’s a bit about me… My name is Luke Hooper and I’m 21 years young. I got diagnosed with Kidney failure April 2012 and went on to Haemodialysis. After nearly a year of ups and downs I was lucky enough to receive a kidney courtesy of[…]

My first dialysis session, my last dialysis session

The build up to my first dialysis session was very short and intense. While I’d attended all of the outpatient clinics to have my kidney function assessed throughout the previous ten years, I had made no attempt to accept and understand my condition and hadn’t thought through the dialysis options but decided on home haemodialysis.[…]

Three and a Half Years On and 8 Weeks Later Still Feeling Tired

I had a blood test just one week following my infusion of Cosmofer on the morning when I have my injection of EPO. The week following that, I was referred to an Endocrinologist in the diabetics department. She reviewed my blood test results and informed me that I was still anaemic. This confirmed what I[…]

ADPKD Information Event

This short blog is on the excellent Autosomal Dominant Polycystic Kidney Disease (ADPKD) event held at Salford Royal Hospital on Saturday 16th November, 2013.  The event was organised by Tess Harris of the PKD Charity and hosted by Dr Grahame Wood, consultant Nephrologist at Salford Royal. If I had to sum up the event in[…]

Naqeeb ‘SAVES’ Mums life

  Hello, My name is Naqeeb Ahmed Qureshi and I am from Pakistan. I just come to this country last year, and here it was diagnosed that my mother has CKD stage 5 kidney disease and I am very, very upset because after this discovery my mother admitted many times to hospital because of different[…]

UK TRANSPLANT GAMES COME TO BOLTON

Dear Friends and Group Members, It’s true: THE 2014 UK TRANSPLANT GAMES ARE COMING TO BOLTON! In August 2014 Transplant Sports UK (TSUK) are bringing the UK Transplant Games to Bolton. If you are really interested and want to keep tabs on the news updates just follow this link: Goto TSUK [Link updated on Thursday[…]