Renal Outpatients Update – Annette and Julie

Hi! We are Annette and Julie – we are the nurses that manage the renal outpatient department. We would just like to let you know about the fantastic changes and improvements we have made recently. We are all aware that people who visit the department have varying degrees of kidney problems. For the majority of people[…]

Complementary Therapy Blog: April-June 2017

Hi everyone, I attended in April the National Kidney Federation (NKF) KPA Day/AGM in Birmingham. We showcased the service to representatives of KPAs across the country and I gave a presentation on the service and its progress. I was so nervous when doing my presentation but I must have done ok as this led to[…]

Peer Support

Blog from Jane Ascott, lead nurse on the Peer Support programme.

  Kidney Patient Peer Support Hi everyone! My name is Jane Ascott. I am the nurse leading on the Peer Support programme for all Salford Royal kidney patients and their relatives. Peer support is when someone affected by kidney disease gives their time to share their experiences with another patient. Peer Support is an effective[…]

Directed donation

Naqeeb Quereshi on donating a kidney to his mother

Article For GMKIN In the name of Allah, the most Beneficent, the most Merciful. Waoo, it has been Four Years Now (13 September 2013-2017) since my mum has her transplant done at Manchester Royal Infirmary (MRI). We arrived in this country in July 2012 as a family to live and progress our life and careers[…]

World Transplant Games

Paul Reynolds at this year’s World Transplant Games

Paul Reynolds at this year’s World Transplant Games Paul, one of our Salford Royal Kidney Ambassadors, reflects on his time at the World Transplant Games in Malaga.   We’re just back from an incredible two weeks – 1st week showing the world the power of organ donation by playing for Team GB at this year’s[…]

Complementary Therapy Blog: March 2017

Complementary Therapy Blog: March 2017

Complementary Therapy Blog: March 2017 We have been on a huge adventure recently. Our recruitment drive took us to do a presentation at Wigan and Leigh College at the Image Centre in Leigh where we had been invited by their Tutor Miranda McFarlane.  We met a  lovely group of students who were studying Complementary Therapies[…]

Entertainment Coordinator

Entertainment Coordinator Volunteer Role

Entertainment Coordinator Volunteer Role Two months on from World Kidney Day and I am delighted to say we are moving forward with our projects to improve the experience of people with kidney disease cared for by Salford Royal. One of the key things we are keen on is working as closely as possible with our[…]

Transplant Games

Transplant Games Q and A with Paul Reynolds

Transplant Games – Q&A with Paul Paul, one of our Salford Royal Kidney Ambassadors, talks about his experience of participating in the British and World Transplant Games. Read about his achievements, how the Transplant Games have helped him, and why he thinks more people should get involved! Tell me about yourself. My name is Paul[…]

DNA Editing

100,000 Genomes Project

100,000 Genomes Project With thanks to Jackie Evans, Mel Kershaw and Emma Wolfenden, a few words on signing up for the 100,000 Genomes project… I’ve taken part in several research studies over the years, the first being a comparative study of Ciclosporin and Sirolimus to which I enrolled on the day of my kidney transplant[…]

Immunosuppression prescription: Progress!

“The reasonable man adapts himself to the world: the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress depends on the unreasonable man.” — George Bernard Shaw I’ve never considered myself an unreasonable man.  In fact at times I feel cursed that I invariably see both sides of an argument[…]

Complementary Therapy Blog – December 2016

Complementary Therapy Blog – December 2016 Hi everyone, We hope you all had a lovely Christmas and New Year. Were you spoiled rotten? December saw a hive of activity and functions to attend. At the beginning of December I enlisted and attended a weekend course at the Christie Hospital in Manchester where they have many[…]

Merry Christmas from HKPA, MRIKPA and everyone at GMKIN

The Christmas Season is upon us and it’s both a time of celebration and reflection.  GMKIN has much to celebrate this year after winning a number of awards which all of you have made possible so when you’re reflecting, give yourselves a huge pat on the back and perhaps, for those of you on dialysis,[…]

New Complementary Therapist in Place

***First complementary therapist cleared and ready to go*** Our first Complementary Therapist is ready, willing and able. It’s good to have her on board – welcome to Ms Claire Gibbon! Claire has a degree in Complementary Therapies and she is so excited to be joining us. There will be no shortage of patients for her[…]

World Kidney Day 2016 – Thank You!

I have been working with our young adults with renal problems for over a year now, and I have to say they still manage to surprise and inspire me, day by day. I want to take the opportunity to thank the incredible gang of young people in the Young Adult Renal Network (YARN) who made[…]

Renal Training Unit – notes from abroad

As spring approaches and the good weather returns (we hope), our thoughts turn to holiday planning and possibly warmer climes.  At Salford Royal, we don’t want our home haemodialysis patients to miss out and traditionally, arranging holiday dialysis either in this country or abroad, was and continues to be dependent on finding a local hospital[…]

Professor Kalra in conversation about kidney disease and research

Professor Phil Kalra of Salford Royal and CKD patient Michael Lomax in a series of videos taking about kidney disease and kidney research.  I’m involved with a few research projects and echo Michael’s comments about it giving you a greater understanding of the disease but I’d also emphasise that, in my case, it has also[…]

Using CKD lab results

Researchers at Manchester University are running a study to improve how CKD patients view and use their lab results online.  Initially the study is looking for patients from Salford Royal or Manchester Royal who have been transplanted for at least one year.  Checkout the poster below for details.  There are links below the poster for[…]

Invitation to join Patient Focus Groups to influence Renal Research

Greater Manchester Kidney Information Network (GMKIN) seeks patient involvement from across Greater Manchester in setting priorities and refining kidney research in Salford and Manchester Do you want to influence kidney research in Greater Manchester? Are you passionate about patients and their families having a voice within their healthcare service?                 Improving care for patients is at[…]

Special trips for kidney patients aged 16 -40

Dear All I got an email recently from a charity that supports 16-40 year olds with serious health conditions. They have supported local kidney patients and their loved ones with ‘special days’ over the last few years. If you or someone you know is the right age group and has kidney problems – you are[…]

Research at SRFT: My experience as a Clinical Research Fellow

Research at SRFT: my experience as a Clinical Research Fellow Hi! My name is Diana and I am one of the Clinical Research Fellows within the Renal Department at SRFT. My career in Renal Medicine started in 2011 as a Specialist Trainee in Renal Medicine. I have always been intrigued by the world of research[…]

Salford Royal gets grant to introduce complementary therapies for dialysis patients

Hi everyone, I am just writing a short blog to deliver some really nice news.  We have been looking at how to get complementary therapy onto all 5 of our dialysis units as part of the patient experience quality improvement work.  Wigan renal unit has some experience going back over many years of offering this.[…]

Acute Kidney Injury: It is not just all in the name!

It is with some trepidation that I am embarking on my first ever blog. My name is James and I am a doctor training as a kidney specialist. When I qualified in 2008 I had the same perceptions as most non-kidney doctors; kidneys are the sacrificial lamb of many illnesses. Be it surgery, major infection[…]

Atypical HUS – a story of tragedy and triumph

“To watch people you love die is very hard to take”.  These are the simple yet poignant words of a man who has battled with the ultra-rare illness atypical haemolytic uraemic syndrome (aHUS) for around 30 years.  It causes sudden kidney failure and is rapidly fatal in at least a third of cases.  Those who[…]

Patient Experience Collaborative

It isn’t the mountains ahead to climb that wear you out; it’s the pebble in your shoe.” – Mohammed Ali   Patient Experience Collaborative  Hi All Vicki and I had a really positive meeting with our Executive Sponsor today.  All the Salford Royal quality improvement projects have a senior sponsor or champion. This is part[…]

Four and a half years on and still feeling tired continued

Well dear friends, I have a serious confession to make which is an indictment to how Chronic Fatigue can affect someone. It affected my concentration so much that I made the simple mistake of thinking that I had only been transplanted three and a half years instead of four and a half years.  Please add[…]

Salford Royal Foundation Trust

Good morning people! Hope everyone has had a top start to the New Year. I signed up for a voluntary job at Salford Royal Foundation Trust yesterday. As far as I’m aware, I’ll be working in and around renal patients who have ‘crash landed’ with kidney failure and giving them a heads up on what[…]

Depression in CKD sufferers

“There are three clinical psychologists attached to the Salford Royal Renal Department.” “People with depression often have worse physical health, as well as worse self-perceived health, than those without depression.” source “1 in 4 people (in Britain) will experience some kind of mental health problem in the course of a year.” source “In a study[…]

ADPKD Information Event

This short blog is on the excellent Autosomal Dominant Polycystic Kidney Disease (ADPKD) event held at Salford Royal Hospital on Saturday 16th November, 2013.  The event was organised by Tess Harris of the PKD Charity and hosted by Dr Grahame Wood, consultant Nephrologist at Salford Royal. If I had to sum up the event in[…]

Naqeeb ‘SAVES’ Mums life

  Hello, My name is Naqeeb Ahmed Qureshi and I am from Pakistan. I just come to this country last year, and here it was diagnosed that my mother has CKD stage 5 kidney disease and I am very, very upset because after this discovery my mother admitted many times to hospital because of different[…]