Dr Janet Hegarty on Shared Care and its Impact

Recently we held a morning workshop to discuss something called ‘shared care’ in haemodialysis. Shared haemodialysis care has been called a ‘half-way house’ between hospital dialysis and home haemodialysis, offering you as a haemodialysis patient the opportunity to manage some of your treatment for yourself, with the support of clinical staff where you need it.[…]

Peer Support

Blog from Jane Ascott, lead nurse on the Peer Support programme.

  Kidney Patient Peer Support Hi everyone! My name is Jane Ascott. I am the nurse leading on the Peer Support programme for all Salford Royal kidney patients and their relatives. Peer support is when someone affected by kidney disease gives their time to share their experiences with another patient. Peer Support is an effective[…]

Volunteering Opportunities

Volunteering Opportunities Engaging with health conditions and volunteering is a great way to develop skills, learn, and to give something back. As a department, we want to offer as many volunteering opportunities as we can to patients as well as their relatives and friends. I wanted to give you a quick reminder of the existing[…]

Entertainment Coordinator

Entertainment Coordinator Volunteer Role

Entertainment Coordinator Volunteer Role Two months on from World Kidney Day and I am delighted to say we are moving forward with our projects to improve the experience of people with kidney disease cared for by Salford Royal. One of the key things we are keen on is working as closely as possible with our[…]

Transplant Games

Transplant Games Q and A with Paul Reynolds

Transplant Games – Q&A with Paul Paul, one of our Salford Royal Kidney Ambassadors, talks about his experience of participating in the British and World Transplant Games. Read about his achievements, how the Transplant Games have helped him, and why he thinks more people should get involved! Tell me about yourself. My name is Paul[…]

Kidney Peer Support – Patient Story

Kidney Peer Support – Patient Story Joan, a peritoneal dialysis patient at Salford Royal, writes about her experience of providing peer support and why she thinks it is a great idea. I was a happily married woman with three grown up step daughters whose life was dramatically changed one day in 2006 when, as I[…]

Transplant Games

Salford Royal and the Transplant Games 2017

Hi All, It’s with great pleasure I am writing to remind everyone the UK Transplant Games 2017 are open for business with a deadline of Friday 12th May 2017 to apply. Here at Salford Royal we first started having a push on with the games a couple of years ago when they came to Bolton.[…]

Peer Support

SRFT Renal Dept. Introduces Peer Support Network

Salford Royal’s renal team is introducing a Peer Support network so that patients with queries, looking for support or simply a conversation with someone with lived experience of CKD have access to a friendly contact.  If you think you’d like to help other patients in this way then please contact Peer Support Nurse Jane Ascott[…]

DNA Editing

100,000 Genomes Project

100,000 Genomes Project With thanks to Jackie Evans, Mel Kershaw and Emma Wolfenden, a few words on signing up for the 100,000 Genomes project… I’ve taken part in several research studies over the years, the first being a comparative study of Ciclosporin and Sirolimus to which I enrolled on the day of my kidney transplant[…]

Immunosuppression prescription: Progress!

“The reasonable man adapts himself to the world: the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress depends on the unreasonable man.” — George Bernard Shaw I’ve never considered myself an unreasonable man.  In fact at times I feel cursed that I invariably see both sides of an argument[…]

NIHR Patient Research Ambassadors

A message from Professor Kalra about becoming a Patient Research Ambassador The Comprehensive Research Network (CRN) is trying to encourage people to sign up to be patient research ambassadors in Greater Manchester. The National Institute of Health Research (NIHR) is committed to raising awareness and involving more people in research and ensuring research is designed[…]

World Kidney Day 2016 – Thank You!

I have been working with our young adults with renal problems for over a year now, and I have to say they still manage to surprise and inspire me, day by day. I want to take the opportunity to thank the incredible gang of young people in the Young Adult Renal Network (YARN) who made[…]

Complementary Therapy on Haemodialysis Programme SRFT Update

Complementary Therapy on Haemodialysis Programme SRFT Update. I have been busy this month setting up to do talks/presentations for the Federation of Holistic Therapists (FHT) and local colleges. I will be speaking to students and trained therapists who may be interested in giving complimentary therapies to our dialysis patients across our 5 units. Talks have[…]

Professor Kalra in conversation about kidney disease and research

Professor Phil Kalra of Salford Royal and CKD patient Michael Lomax in a series of videos taking about kidney disease and kidney research.  I’m involved with a few research projects and echo Michael’s comments about it giving you a greater understanding of the disease but I’d also emphasise that, in my case, it has also[…]

Using CKD lab results

Researchers at Manchester University are running a study to improve how CKD patients view and use their lab results online.  Initially the study is looking for patients from Salford Royal or Manchester Royal who have been transplanted for at least one year.  Checkout the poster below for details.  There are links below the poster for[…]

PKD update: PKD Clinic, Tolvaptan and ‘Befriending’ Event

An update from Dr Janet Hegarty and Dr Grahame Wood of Salford Royal Foundation Trust covering the PKD Clinic, Tolvaptan and the launch of a PKD patient Befriending project run by the PKD Charity UK.  For details please follow the link below. PKD update: PKD Clinic, Tolvaptan and ‘Befriending’ Event

Patients can change the future of research

October 15th, 2003 is a date I celebrate with my family every year, it isn’t my birthday but to me it felt like a rebirth.  It was the day I received my kidney transplant.  It was also the day I enlisted in my first research study.  The details of the research escape me although I[…]

Research study into the effects of exercise on dialysis patients

PEDAL Is one of our EXCITING new studies being run from the Salford Renal Unit and the Bolton Unit. This study looks at the benefits of exercise whilst on dialysis!!!! Patients will need to meet specific criteria to take part e.g. being over 18, on haemodialysis for more than 3 months and able to provide[…]

Invitation to join Patient Focus Groups to influence Renal Research

Greater Manchester Kidney Information Network (GMKIN) seeks patient involvement from across Greater Manchester in setting priorities and refining kidney research in Salford and Manchester Do you want to influence kidney research in Greater Manchester? Are you passionate about patients and their families having a voice within their healthcare service?                 Improving care for patients is at[…]

Being in pain is a bit of a pain

There were so many great talks and presentations at the British Renal Society’s Conference in Leeds last week that it’s taken several days of reflection for them all to sink in. My mind however keeps returning to a talk from a junior doctor from Imperial College Renal and Transplant Centre, Louis Koizia. His excellent and[…]

Abba, Dementia and Empathy

Cristina and I have given a few presentations about GMKIN in the past few months but they felt like rehearsals for the main event, the British Renal Society Annual Conference which this year was held at Leeds University. Our journey to Leeds didn’t bode well for the rest of the conference: motorway traffic jams, a[…]

Shared Decision Making for kidney patients

With many thanks to Kate McNulty for allowing us to share this video.  Shared Decision Making (SDM) is a useful resource to identify your options when you’re approaching the point where you need to decide which type of dialysis is most suitable for you.  It will also help you talk in greater detail to your[…]

CKD Lab Results Research

  Stuart Powell and I attended an initial meeting with Lamiece Hassan and Paolo Fraccaro at the Health eReseach Centre (HeRC) in Manchester on Friday morning to discuss Paolo’s study into how best to present lab results to patients with Chronic Kidney Disease.  Following a brief introductory chat Paolo gave a short presentation on the[…]

Personalised Medicine

Personalised Medicine

Personalised medicine is one of the current buzz phrases knocking around the healthcare community.  It is high tech, innovative and smart.  People speak about it in an excited way as the next big step for medicine in the 21st century. Personalised medicine is jargon for the development and use of medicines targeted to the individuals[…]

Patient Experience Collaborative

It isn’t the mountains ahead to climb that wear you out; it’s the pebble in your shoe.” – Mohammed Ali   Patient Experience Collaborative  Hi All Vicki and I had a really positive meeting with our Executive Sponsor today.  All the Salford Royal quality improvement projects have a senior sponsor or champion. This is part[…]

Dipping toes of some cracking good work!

  Hi, my name is Janet Hegarty and I’m one of the kidney consultants at Salford Royal.  Over the next year or two, my guess is (now I’ve dipped my toe in these awfully modern waters!) I’ll mainly be blogging about some frankly cracking good work that kidney patients, their supporters and staff are doing[…]

From doing nothing to being alive again

Well my life has changed since I started losing my last Transplant. Went so downhill, so fast. Weight just fell off me and was constantly tired. It comes to something when you ask to start Dialysis, but having been through it all before I knew what would happen if I left it till I really[…]

Getting and using your medicine: what are your views?

We are a team of researchers who are interested in the safe use of medicines. We would like to find out how medicines are supplied to patients and how patients use the medicines they are given. Would you be willing to take part in a group discussion to share your experiences of getting and using[…]

Tripadvisor type service for the NHS

According to this article http://www.theguardian.com/society/2013/nov/28/nhs-launch-tripadvisor-style-website?CMP=twt_gu the government intend to introduce a Tripadvisor type service to the NHS having trialled it for several months in parts of London and the north-east. In the past I’ve had reason to both complain about and praise the care I’ve received within the NHS and have done so either directly[…]