Immunosuppression prescription: Progress!

“The reasonable man adapts himself to the world: the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress depends on the unreasonable man.” — George Bernard Shaw I’ve never considered myself an unreasonable man.  In fact at times I feel cursed that I invariably see both sides of an argument[…]

PKD update: PKD Clinic, Tolvaptan and ‘Befriending’ Event

An update from Dr Janet Hegarty and Dr Grahame Wood of Salford Royal Foundation Trust covering the PKD Clinic, Tolvaptan and the launch of a PKD patient Befriending project run by the PKD Charity UK.  For details please follow the link below. PKD update: PKD Clinic, Tolvaptan and ‘Befriending’ Event

Tolvaptan: A Game Changer?

It’s almost two years since I wrote a blog called Parental Dilemma in which I posed the question in relation to a genetic disorder “would you test your child or would ignorance be bliss?” The genetic disorder in question was Autosomal Dominant Polycystic Kidney Disease (ADPKD) and it caused the complete failure of my kidneys[…]

Information sharing and where it goes wrong

I sometimes struggle for ideas for my blogs and often find that reading the blogs of others sparks an idea in my head.  This blog is based on comments I made to Anne Cooper (@anniecoops) about her recent musings on Information Governance and her assertion that the processes involved in capturing personal data aren’t always[…]

The Ticking Clock of Routine and Twitter Friends

The weekend didn’t get off to a good start so it shouldn’t have come as a surprise that by Sunday afternoon my mood was heading steadily downwards. We were supposed to be travelling to the north-east to visit my step mother-in-law in her care home but the snow that greeted us on Saturday morning put[…]

Getting and using your medicine: what are your views?

We are a team of researchers who are interested in the safe use of medicines. We would like to find out how medicines are supplied to patients and how patients use the medicines they are given. Would you be willing to take part in a group discussion to share your experiences of getting and using[…]

Changes to Immunosuppression Medication Prescription

Some of you may have read a recent warning from the National Kidney Federation regarding changes to the method of prescribing immunosuppression drugs for transplant patients. Immunosuppression drugs will now be prescribed and dispensed from the patient’s renal centre. I had expected to hear more about this significant change but have heard nothing. Then again,[…]