Kidney Peer Support – Patient Story

Kidney Peer Support – Patient Story Joan, a peritoneal dialysis patient at Salford Royal, writes about her experience of providing peer support and why she thinks it is a great idea. I was a happily married woman with three grown up step daughters whose life was dramatically changed one day in 2006 when, as I[…]

Peer Support

SRFT Renal Dept. Introduces Peer Support Network

Salford Royal’s renal team is introducing a Peer Support network so that patients with queries, looking for support or simply a conversation with someone with lived experience of CKD have access to a friendly contact.  If you think you’d like to help other patients in this way then please contact Peer Support Nurse Jane Ascott[…]

Better the Devil you know?

I suppose it’s human nature when diagnosed with a serious chronic illness to compare one’s self to others. Often I see posts in various renal support groups of patients stating that they feel family, friends, and work colleagues would be more understanding of their illness if they had cancer. Some even state ‘they wish they[…]

Fruit Kebabs

Fruit Kebabs Have some residual heat left over on your barbecue? Toast up these strawberry and marshmallow kebabs. Hull (remove the tough stalk) from a handful of strawberries Thread 3 strawberries and 4 marshmallows onto a metal skewer Carefully hold over the barbecue turning slowly until the marshmallows are slightly toasted Allow to cool slightly[…]

Summer burgers for the BBQ

Home-made beef burgers for the BBQ Burgers are a staple to many peoples barbecue during the summer.  However those bought from the supermarket often contain phosphate additives and added salt, making them less ideal for people with renal disease. Making them with good quality mincemeat will reduce the highly absorbable phosphate additives, whilst also being[…]

Introduction to The Seed

Cristina, the initiator of #GMKIN, asked me to write a poem about relationships developed on #GMKIN to share at #UKKW2016. When I was first diagnosed with #ESRD eight years ago there were no local kidney information support groups that I was informed about or aware of. #GMKIN helps fill that gap. I hope people enjoy[…]

Janet Cairnie’s Complementary Therapy blog

BLOG 5 April 2016 This month started with an article to prepare for Leo Clifton the Volunteer Co-ordinator to place in this months ‘Volunteer’ magazine. It gave a description of my role and how I am recruiting and training Volunteers. The Presentations and meetings are going really well. So far I have covered West Lancashire[…]

Fish and couscous salad

Fish and couscous salad Adapted from British Heart Foundation website   https://www.bhf.org.uk/heart-matters/healthy-eating-toolkit/recipe-finder/fish-and-couscous-salad This is a really quick recipe and great recipe for using up leftovers. Couscous is an interesting alternate to rice or pasta and is also low in potassium and phosphate. If you are on a low potassium restriction: this would be approximately 3[…]

Renal Training Unit – notes from abroad

As spring approaches and the good weather returns (we hope), our thoughts turn to holiday planning and possibly warmer climes.  At Salford Royal, we don’t want our home haemodialysis patients to miss out and traditionally, arranging holiday dialysis either in this country or abroad, was and continues to be dependent on finding a local hospital[…]

Professor Kalra in conversation about kidney disease and research

Professor Phil Kalra of Salford Royal and CKD patient Michael Lomax in a series of videos taking about kidney disease and kidney research.  I’m involved with a few research projects and echo Michael’s comments about it giving you a greater understanding of the disease but I’d also emphasise that, in my case, it has also[…]

Research at SRFT: My experience as a Clinical Research Fellow

Research at SRFT: my experience as a Clinical Research Fellow Hi! My name is Diana and I am one of the Clinical Research Fellows within the Renal Department at SRFT. My career in Renal Medicine started in 2011 as a Specialist Trainee in Renal Medicine. I have always been intrigued by the world of research[…]

Half full or half empty?

  My daughter asked me an interesting question the other day. “Is your glass half full or half empty mum?”. I thought about this and started reflecting on my life. Do I think that I’ve been dealt some unlucky cards? Well yes if I consider that not long after I separated from my daughter’s father[…]

Shared Decision Making for kidney patients

With many thanks to Kate McNulty for allowing us to share this video.  Shared Decision Making (SDM) is a useful resource to identify your options when you’re approaching the point where you need to decide which type of dialysis is most suitable for you.  It will also help you talk in greater detail to your[…]

Acute Kidney Injury: It is not just all in the name!

It is with some trepidation that I am embarking on my first ever blog. My name is James and I am a doctor training as a kidney specialist. When I qualified in 2008 I had the same perceptions as most non-kidney doctors; kidneys are the sacrificial lamb of many illnesses. Be it surgery, major infection[…]

My 5 day countdown to my #Kidney #Transplant

Hi Everyone, My name is Joseph, and I am a CKD patient who is having a kidney Transplant on Friday 01st August 2014. I am very fortunate that my older Brother is giving me the gift of life. In 2010 I became ill and quickly the doctors diagnosed CKD. For the next 4 years I[…]

Guest blog from John Roberts on organ donation

John Roberts urges people to spell out their organ donation decision.   New figures out this week show that just 45% of families agree to organ donation going ahead if they are unaware of their loved one’s decision to be a donor but this figure rises to 95% when they know the decision. To mark[…]

Dipping toes of some cracking good work!

  Hi, my name is Janet Hegarty and I’m one of the kidney consultants at Salford Royal.  Over the next year or two, my guess is (now I’ve dipped my toe in these awfully modern waters!) I’ll mainly be blogging about some frankly cracking good work that kidney patients, their supporters and staff are doing[…]

ALL THE KING’S HORSES AND ALL THE KING’S MEN…..

So I started dialysis last week Tuesday… What a nerve racking period it was, pre-dialysis. I couldn’t sleep, I couldn’t stop thinking about what could go wrong..infections, the tube not working, pulling it out of my body by mistake etc; above all the fact that this is my life now. I would no longer be[…]

Raise Funds for HKPA by Steven Chadderton

Steven Chadderton I am Steven Chadderton – Father of my Eldest Daughter, Helen Louise Chadderton who has entered the Great Manchester Cycle Race of 52 Miles (Sunday, 29th June 2014) and also the Manchester to Blackpool Cycle Race (Sunday, 13th July 2014) along with her Partner – Shaun Parkinson, to raise Funds for the Hope Kidney Patients Association – Salford. I have been a Renal[…]

Newbie to gmkin..Hello :-)

Hello all, complete newbie to gmkin and this blogging malarkey, be kind… Not really sure how to start this, so here goes… When you’re asked ‘how are you?’ or ‘all ok with you?’.. It’s easier to answer ‘alls ok’ or ‘not too bad’ Not say how rubbish you feel things really are. Why would anyone[…]

The Impenetrable Language of Research Documents

Many years ago as I was taking my first steps into Information Technology management I was invited by the board of directors to present a proposal detailing my recommendations on resolving the performance issues of the company’s computer system. The day duly arrived, I was summoned to join them in the boardroom and nevously began[…]

From doing nothing to being alive again

Well my life has changed since I started losing my last Transplant. Went so downhill, so fast. Weight just fell off me and was constantly tired. It comes to something when you ask to start Dialysis, but having been through it all before I knew what would happen if I left it till I really[…]

Blog No. 2 – The Race season!

Hi all, I haven’t had chance to blog recently, have been unwell – not kidney related!!! The usual winter coughs and colds but not clearing couldn’t seem to shake them, and then my asthma kicking off as well, only managed to get out mountain biking and hiking a couple of times for leisure rather than[…]

Changes to Immunosuppression Medication Prescription

Some of you may have read a recent warning from the National Kidney Federation regarding changes to the method of prescribing immunosuppression drugs for transplant patients. Immunosuppression drugs will now be prescribed and dispensed from the patient’s renal centre. I had expected to hear more about this significant change but have heard nothing. Then again,[…]

Salford Royal Foundation Trust

Good morning people! Hope everyone has had a top start to the New Year. I signed up for a voluntary job at Salford Royal Foundation Trust yesterday. As far as I’m aware, I’ll be working in and around renal patients who have ‘crash landed’ with kidney failure and giving them a heads up on what[…]

Sam Leight – New to blogging :-)

Hi, I am new to blogging but I think the idea is absolutely fantastic… Its good to hear stories of how other people are coping and the different difficulties individuals face and how they are overcoming them… It also seems to be a brilliant way to support each other when at first we think we[…]

Three and a Half Years On and 8 Weeks Later Still Feeling Tired

I had a blood test just one week following my infusion of Cosmofer on the morning when I have my injection of EPO. The week following that, I was referred to an Endocrinologist in the diabetics department. She reviewed my blood test results and informed me that I was still anaemic. This confirmed what I[…]

Healthy Kidneys, Healthy Lives

I spoke briefly at yesterday’s Healthy Kidneys, Healthy Lives event at the Reebok Stadium in support of Cristina Vasilica’s excellent work in developing and promoting GMKIN. This is what I had to say… “Good day everybody, it’s a pleasure to see such a well attended and supported event. Cristina has asked me to talk about[…]

ADPKD Information Event

This short blog is on the excellent Autosomal Dominant Polycystic Kidney Disease (ADPKD) event held at Salford Royal Hospital on Saturday 16th November, 2013.  The event was organised by Tess Harris of the PKD Charity and hosted by Dr Grahame Wood, consultant Nephrologist at Salford Royal. If I had to sum up the event in[…]

My body, my dialysis choice

Unwittingly thrust into the renal world with CKD back in the 1950’s, I never really had any control in the treatment options until I was informed that my kidney function had reached a point where dialysis had to be considered for my future treatment. Fortunately with the proactive support of my CKD team I was[…]

Things you always wanted to know about your renal diet – but always forget to ask—Diane Green, Renal Dietician

The renal diet is one of the most complicated diets to learn and follow, with every patient having different dietary restrictions, which depend on your blood results and medical treatment. The advice might include altering your intake of: *Potassium (including fruit and vegetables) *Phosphate (include dairy foods) * Sodium or salt (including processed, tinned foods)[…]