NICE Guidelines: Renal Replacement Therapy

Renal Replacement Therapy Consultation

Renal Replacement Therapy

NICE (National Institute of Health & Social Care Excellence) are planning the first-ever guidelines on preparation for Renal Replacement Therapy for both adults and children. They will apply in England only but often the other UK nations use them too. They cover preparation and planning for transplant, peritoneal dialysis, haemodialysis and conservative care (the decision not to have dialysis). We would like to hear your thoughts so we can include them in our response on these important guidelines for us, our families, our medical teams and those who commission renal services.

Key areas that are covered:

1 Assessment for people with deteriorating renal function for whom renal replacement therapy (RRT) might be appropriate.

2 Information, education and support for people for whom RRT might be appropriate and their families or carers.

3 Decision-making with people for whom RRT might be appropriate and their families or carers, including the option of conservative care.

4 RRT and conservative care: which option for which person, when and how frequently.

5 Recognition of symptoms.

6 Fluid restriction and dietary management of, for example, sodium, protein and potassium.

7 Transferring between forms of RRT (for example, switching between in-centre and home dialysis).

8 Discontinuing RRT.

9 Coordination of care for people undergoing RRT or conservative care (for example, between different specialities involved in their care).

Attached is the summary of the draft guidance, and the link to all the information on the draft guideline is here: https://www.nice.org.uk/guidance/indevelopment/gid-ng10019

With suggestions on when to start treatment (1.1), recognising symptoms (1.6), psychological support (1.8) information about treatments and how they affect lifestyle (table 2), weight guidance for transplantation (1.3.7) there is a lot for us to think about and this is a chance to influence this.

How to respond:

Please send comments on any of the key areas covered to Fiona Loud, on fiona.loud@kidneycareuk.org, or write to us at Kidney Care UK, 3 the Windmills, Turk Street, Alton GU34 1EF by Thursday 17th May as we will be responding to NICE on Monday 21st May.

Profile photo of Rob Finnigan

I’m an ADPKD patient who was lucky enough to have a transplant in 2003 after only eleven months of dialysis. I'm the north-west Patient Advocacy & Support Officer for the BKPA and my interests, other than my role within GMKIN, include sport, music and politics . Follow me on Twitter: @finnigr

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