It took many years for my husband to admit to himself he was so ill, then talk openly about it and finally accept the help and support this required. As his wife and carer I walked on eggshells. However, light years seemingly later and despite enduring life-threating complications along the way, he has come out the other end becoming an inspirational help to other sufferers. His ‘life sentence’ has empowered him. He has found the GMKIN site invaluable and wished it was available when he first became ill. Maybe it may have given us both a bit more information and support, but such technology wasn’t available back then! Makes us feel like a pair of dinosaurs!!